![]() ![]() What I can say is that those who I did find were extremely positive and it had changed their lives for the good. I know it was difficult to connect with many who had had the full procedure as many feel well and leave the forums. I am in very very early stages but happy to support. Please feel free to contact me direct if you want to ask anything about the experience of pace and ablate. I wish you the very best and a quick road to treatment. This forum has been great for support and help along the way when it has felt a very long and lonely journey. ( if they knew me, I only ring if desperate and in need of help) Maybe I would not have been quite so poorly. I wished I had not listened to the arrythmia nurses to keep toughing it out and stay at home. I got more help from the right people then like cardiologist who only can prescribe certain medication/procedures. If at all worried or get new symptoms like chest pains do go straight to AandE. They may do a cardioversion to get the HR down even for a short time to get you to the pace and ablate date. The one thing I can say is that every single professional may tell you something slightly different in terms of waiting or plan of what to do. I am very thankful for our NHS but hope that from this point on I can have a break from their care and just heal. Once you get there, the surgical care is amazing. Interestingly there was a thread on here that had similar comments and it was the same hospital. So this bit of care and support has been a real let down. I am very resilient and only ring if I am desperate and cannot take any more. But what has driven me mad is the contradictary advice I have been given along the way such as ring me if you feel unwell and I will do you as an emergency from the consultant but when you ring you get passed around and end up back at the arrhythmia nurses who tell me I am lucky I have not got to wait 12 months like some people tough it out and other phrases that can feel unkind when you feel so ill. I understand that there are many people waiting and I am happy to wait my turn as long as I am safe. 4 weeks becomes 12 weeks and urgent call back became 10+days and a collapse that needed urgent care. This stage affects more than just the pivotal point of. Ocular migraine and migraine aura worsen vision, followed by symptoms like flickering lights, blind spots in, sudden flashes of lights and other patterns. At all times I have been high priority for next stage and should not have had to wait very long in normal times but because of COVID there were delays. Kaleidoscope vision in turn can be caused by much worse conditions such as Traumatic Brain Injury (TBI), stroke and retinal deceases. Then 10 days later I collapsed and had to be blue lighted to hospital and have node ablation repeated as emergency. 12 weeks later node abalation which failed. CRT-p device fitted March this year but not switched on. Have had continuous rates of above 130bpm for 9 months developed heart failure 8 admissions to hospital including a week over Christmas and on maximum drug doses. Had break from A Fib for 8 months but Fleccainide dropped rate to 30sbpm so stopped that and heart has gone crazy. ![]() ![]() I am nervous about stroke/TIAs as I initially had no anticoagulants due to low CHADS score and had a series of them when I started with A Fib. ![]()
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